info@rareimpact.euRARE IMPACT is a consortium of manufacturers of gene and cell therapies and umbrella organisations such as the European Federation of Pharmaceutical Industries and Associations (EFPIA) and the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE).
The collaboration shall help to avoid duplications, speed up the work, optimize synergies and impact regarding the access to gene and cell therapies. The collaboration is comprised of:
Chair and Participant
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 970 rare disease patient organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.
EURORDIS acts as both chair and participant in the collaboration representing their patient organisation membership.
18 Gene and Cell Therapy Manufacturers
3 Non-profit Organisations
3 Trade Associations
Secretariat Support
Secretariat support for the collaboration is provided by Dolon Ltd. a consultancy that specialises in strategic pricing and market access for rare and severe diseases.